tag:blogger.com,1999:blog-4739498627453680997.post487035066551725409..comments2023-07-16T03:34:59.018-06:00Comments on Revising the Dream: Truth Be ToldUnknownnoreply@blogger.comBlogger11125tag:blogger.com,1999:blog-4739498627453680997.post-22772232235943555462008-05-01T20:13:00.000-06:002008-05-01T20:13:00.000-06:00I just ran across your site. I understand your ex...I just ran across your site. I understand your exhaustion. We've been researching the SDR for over a year. Thought you might want to be aware of an orthopedic surgeon we've heard great things about...http://www.pediatric-orthopedics.com/The_Practice/Roy_M__Nuzzo__MD/roy_m__nuzzo__md.html<BR/>Dr. Roy Nuzzo is an orthopedic surgeon and i've heard from multiple families that he is most interested in doing what's best for the child and has had incredible results using different and less invasive techniques. It might be worth getting another opinion from him. We did, remotely, and am glad we have.<BR/><BR/>I hope you find an extra ounce of umph and dig deep. Don't ever doubt your instincts! There is no one looking out for your child more than you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-29664449084367303492008-04-11T12:32:00.000-06:002008-04-11T12:32:00.000-06:00Oh Chrystie, I wish I had half your eloquence. You...Oh Chrystie, I wish I had half your eloquence. You definitely need to become a pro. writer. <BR/><BR/>I am continually amazed by your strength but sometimes its ok to get in the pit. Just keep clawing and scratching and you'll make your way out of it. <BR/><BR/>Big hugs to you!Dawnhttps://www.blogger.com/profile/14600361913851978373noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-35990933957521924462008-04-10T21:15:00.000-06:002008-04-10T21:15:00.000-06:00First off you made me cry again.Secondly you will ...First off you made me cry again.<BR/><BR/>Secondly you will NEVER be okay with any of those things. You will learn to adjust as time moves on. You WILL learn to revise the dream over and over....because there is really no other choice. You will do all this for Ellie and then some. <BR/><BR/>Keep pushing and keep fighting. That's all you can do and the rest is up to God. <BR/><BR/>I'm right there with you.Patyrishhttps://www.blogger.com/profile/02001544727042582614noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-11811671514623849032008-04-10T09:32:00.000-06:002008-04-10T09:32:00.000-06:00Now this is one of those times that I wish I had Y...Now this is one of those times that I wish I had YOUR phone #!!!! Sweet Chrystie, I applaud your openness, it's so fresh & inspiring....I have asked myself those questions MANY times over myself!!! I just think to myself that TOMORROW IS A NEW DAY & with it....a new outlook. Hang in there, honey. You know you are doing all that you can for Ellie & that's all that matters!!<BR/>HUGS & LOVE<BR/>XOXOXOAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-39767882064999380492008-04-09T18:20:00.000-06:002008-04-09T18:20:00.000-06:00I read your post last night and it left me in tear...I read your post last night and it left me in tears. My heart hurts for you right now. I don't know what to say but wanted to let you know that your post moved me and that you voiced so many of the questions I ask myself every day when I look at my son. Thank you for being so open and honest.Barbarahttps://www.blogger.com/profile/03431752394930775920noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-90997381898720350412008-04-09T18:12:00.000-06:002008-04-09T18:12:00.000-06:00I love your openness and honesty. One of the harde...I love your openness and honesty. One of the hardest and easiest places to be is in God's hands. To hand over everything to Him, is not natural for our selfish flesh. I am praying for you. I am so praying for you.Amandahttps://www.blogger.com/profile/09216348983744367328noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-16454596825038390692008-04-09T10:57:00.000-06:002008-04-09T10:57:00.000-06:00Praying with you guys! We love you and know that G...Praying with you guys! We love you and know that God has great plans for Ellie. I wish I could be near you and give you hugs!<BR/><BR/>~MelodieBill and Melodiehttps://www.blogger.com/profile/13178648710400548750noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-70784326640873427612008-04-09T08:18:00.000-06:002008-04-09T08:18:00.000-06:00Hugs! I'm hate that you are struggling. I wish th...Hugs! I'm hate that you are struggling. I wish there was something I could do to make it all better. <BR/><BR/>KristyKristyhttps://www.blogger.com/profile/09294051152639516768noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-6794245106051162612008-04-08T22:25:00.000-06:002008-04-08T22:25:00.000-06:00M.D. does NOT stand for Major Deity, and doctors a...M.D. does NOT stand for Major Deity, and doctors are <B>not</B> infalliable. I'd guess Dr. Parks has had negative reports before from other doctors, and decided he didn't agree with them. All you can do is try! He's the expert on this particular procedure, and better qualified to see if it might help Ellie. Keep on fighting! I don't think you'll gain any peace about it until you feel you've tried all you could. We'll keep praying.Mehttps://www.blogger.com/profile/02176545873386953595noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-40593080973268393232008-04-08T21:24:00.000-06:002008-04-08T21:24:00.000-06:00Hold true to God's promises. Don't cease but stay...Hold true to God's promises. Don't cease but stay grounded at the same time. I am trying hard to do the same on this end. <BR/><BR/>Love you!Sunnyhttps://www.blogger.com/profile/14570018200281339937noreply@blogger.comtag:blogger.com,1999:blog-4739498627453680997.post-50093033107455872682008-04-08T20:32:00.000-06:002008-04-08T20:32:00.000-06:00Wow. What a moving post. I haven't thought of some...Wow. What a moving post. I haven't thought of some of those things. It made my eyes tear up. I agree with the just cuddling. Logen sits on my lap, and I do a sensory massage. I can't just sit next to him w/o working him over. You're doing great things for Ellie! Keep fighting for her! St Louis Children's is awesome! I've heard great things about Dr Parks. Might wana see if you can get in with Dr Brunstrom while you are there. The CP center will give it to you!* ~ *Jessica* ~ *https://www.blogger.com/profile/04624325345353463566noreply@blogger.com